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2015 Friends of Sofia
Equine Event

Saturday, October 10, 2015
Gelinas Farm | Pembroke, NH

Sofia and Sis.jpg

We ride to fly, to feel, to touch, to breathe, to laugh, to soar, to overcome, to relax, to get away, to belong, to feel strong, to heal, to love and to be loved back. We ride to live and together, to fight to eliminate Spinal Muscular Atrophy.

Several months ago I knew nothing about SMA, until a friend’s granddaughter, Sofia, was diagnosed with this rare genetic disease. To learn that SMA paralyzes one’s ability to walk, eat, or breathe and that there is no cure and no treatment I wanted to rally fellow equestrians together in an effort to show support, raise funds, awareness and most importantly, HOPE.

Cure SMA is dedicated to the treatment and cure of Spinal Muscular Atrophy (SMA)—a disease that takes away a person’s ability to walk, eat, or breathe. 8 million Americans carry the gene that causes SMA , and it is the number one genetic cause of death for infants.

Since 1984, we’ve directed and invested in comprehensive research that has shaped the scientific community’s understanding of SMA. We are currently on the verge of breakthroughs in treatment  that will strengthen our children’s bodies, extend life, and lead to a cure.

We have deep expertise in every aspect of SMA—from the day-to-day realities to the nuances of care options—and until we have a cure, we’ll do everything we can to support children and families affected by the disease.

Learn more about how you can help us reach a treatment and cure at www.cureSMA.org.

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Total Raised:

$7,262.00

145% Raised of $5,000.00 Goal