Use the links below to register for these free webinar events. Please note, you will need to register for each individual event that you are interested in attending. Registration confirmations will come with a specific link that can only be used for that event. Keep an eye out for the full 2020 Virtual SMA Conference booklet, which will provide further details on each event.

View the 2020 Virtual SMA Conference booklet ▶

2020 Virtual SMA Conference Schedule

(All times in Central Time)

Monday, June 8, 2020

• 10:00 a.m. - 11:00 a.m. - Welcome: Opening Session for the 2020 Virtual SMA Conference 
• 11:30 a.m. - 12:15 p.m. - 2020 SMA Clinical Care and Research Updates 
• 1:00 p.m. - 2:00 p.m.  - Virtual Session for Newly Diagnosed Families (reserved for families who have been diagnosed in the past 12-18 months)
• 3:00 p.m. - 4:00 p.m.  - Family Symposium, Sponsored by Genentech: SMA My Way: When Resilience is a Superpower - Support Systems, Changing Perspectives and Focusing on the Positives with Shane Burcaw and Hannah Aylward
• 6:00 p.m. - 7:00 p.m. - Grandparent Virtual Mingle (to register for this event, please email familysupport@curesma.org)
• 7:00 p.m. - 9:00 p.m. - Adults with SMA Social at Home, sponsored by Biogen (to register for this event, please email familysupport@curesma.org) 

Tuesday, June 9, 2020

• 10:00 a.m. - 10:45 a.m. -  Aquatic Physical Therapy 
• 11:30 a.m. - 12:15 p.m. - Life After Diagnosis: 25 Years of Lessons Learned 
• 2:00 p.m. - 3:00 p.m. - Family Symposium, Sponsored by Biogen: Treatment and Multidisciplinary Care in SMA
• 7:00 p.m. - 9:00 p.m. - Adults with SMA Lounge Night, sponsored by Biogen (to register for this event, please email familysupport@curesma.org) 

Wednesday, June 10, 2020

• 10:00 a.m. - 10:45 a.m. - Medical Management of Adults with SMA 
• 11:30 a.m. - 12:15 p.m. - How to Find, Hire and Manage Your PCAs 
• 1:00 p.m. - 1:45 p.m. - Relevant Assistive Technology Tools for Individuals with SMA: Where We've Come and Where We’re Going! 
• 3:00 p.m. - 4:00 p.m. - Family Symposium, Sponsored by AveXis: Zolgensma (onasemnogene abeparvovec-xixo) Clinical Study Update
• 7:00 p.m. - 9:00 p.m. - Adults with SMA Social at Home, sponsored by Biogen (to register for this event, please email familysupport@curesma.org) 

Thursday, June 11, 2020

• 10:00 a.m. - 10:45 a.m. - Oral Placement Therapy (OPT): Using Muscle-Based Therapy with Clients with the Diagnosis of SMA 
• 11:30 a.m. - 12:15 p.m. - Breathing Basics 
• 2:00 p.m. - 2:45 p.m. - SMA Clinical Trials 
• 3:30 p.m. - 4:15 p.m. - Women's Health in SMA

Friday, June 12, 2020

• 10:00 a.m. - 10:45 a.m. - Navigating the Special Education Process: Setting Our Kids up for Success 
• 11:30 a.m. - 12:15 p.m. - Special Plans for a Special Life 
• 2:00 p.m. - 2:45 p.m. - What it Means to be a Teen on Wheels

Some of the webinar sessions will be available to watch at a later date, but we hope you will still join us live.

If you have any questions, feel free to email conference@curesma.org.