Why We Walk
Rare diseases like SMA can make affected kids and their families feel isolated and alone. Our Cure SMA Walk-n-Rolls show that the opposite is true: we are a strong and beautiful community of fighters, dreamers, and visionaries. Our son Max (4 years old, SMA type 1) leads the way in showing strength while living with SMA. Our family and friends are privileged and excited to walk and roll alongside him towards the better future that lies beyond SMA. - The Lasko Family
We walk in memory of my niece Erin who died 24 years ago at the age of 5 months. Though she did not live long, it was her courage that gave us the reason to raise money and help other families fighting this disease. We are getting so closer to breakthroughs that will lead to a cure for SMA, we will not give up. - Beverly Venedam, Team Erin Go Bragh
Cure SMA is dedicated to the treatment and cure of Spinal Muscular Atrophy (SMA)—a disease that takes away a person’s ability to walk, eat, or breathe. 8 million Americans carry the gene that causes SMA, and it is the number one genetic cause of death for infants.
Since 1984, we’ve directed and invested in comprehensive research that has shaped the scientific community’s understanding of SMA. We are currently on the verge of breakthroughs in treatment that will strengthen our children’s bodies, extend life, and lead to a cure.
We have deep expertise in every aspect of SMA—from the day-to-day realities to the nuances of care options—and until we have a cure, we’ll do everything we can to support children and families affected by the disease.
Learn more about how you can help us reach a treatment and cure at www.cureSMA.org.