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Cincinnati Summit

Saturday, August 24, 2019
Renaissance Cincinnati Downtown Hotel | Cincinnati, OH

2019 SOS Agenda Photo

Agenda

9:00am Welcome

9:10am - 9:45am: SMA Clinical Trials and Research Update
Bakri Elsheikh, MD | Associate Professor of Neurology | Director, EMG Laboratory | Director, Neuromuscular and Clinical Neurophysiology Fellowships | Neuromuscular Division, Department of Neurology | The Ohio State University Wexner Medical Center

9:45am - 10:00am: An Overview of Biogen and SPINRAZA Biogen

10:00am - 10:30am: SMA Standard of Care for Physical and Occupational Therapy
Jennifer Hubbell OTR/L, Cincinnati Children’s Hospital Medical Center
Kelly C Bonarrigo PT, DPT, Cincinnati Children’s Hospital Medical Center

10:30am - 11:05am: University of Utah TRAILS Adaptive Sports Program
Casey Fenger, Medical Student, University of Utah School of Medicine
Melissa McIntyre, PT, DPT, Physical Therapist, University of Utah

11:05am - 11:20am: AveXis: Introducing a new SMA treatment option for children under the age of 2 AveXis, A Novartis Company

11:20am - 11:40am: Lunch Buffet Open

11:40am - 12:10pm: Aquatic Therapy
Jennifer Martyn, PT, Wave Therapies, PLLC Owner & Lead Physical Therapist

12:10pm - 12:40pm: SMA Pulmonary Standard of Care
John Pascoe, MD, Assistant Professor in Pediatric Pulmonary and Sleep Medicine, Cincinnati Children’s Hospital Medical Center
Neepa Gurbani, DO, Assistant Professor, Cincinnati Children’s Hospital Medical Center

12:40pm - 1:15pm: Quality of Life in SMA
Cuixia Tian, MD | Pediatric Neurologist | Assistant Professor | Co-director, Comprehensive Neuromuscular Care Clinic | Cincinnati Children’s Hospital Medical Center

1:15pm - 1:45pm: Bone Health in SMA
Halley Wasserman, MD, Cincinnati Children’s Hospital Medical Center | Assistant Professor, Division of Pediatric Endocrinology

1:45pm - 2:00pm: Update on Spinal Muscular Atrophy Program and Clinical Trials Genentech/Roche

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