New York City Summit of Strength

Saturday, September 25, 2021
New York Marriott Marquis | New York, NY

2019 SOS Main Photo

Online registration is now closed. For more information email

The Summit of Strength is a community educational program hosted by Cure SMA. This program is currently in its fourth year, after three successful years of bringing together almost 3,000 attendees from all across the United States in person, and almost 1,300 live viewers virtually through the Summit of Strength Webinar Series!

Summits are crafted to provide people of all ages and types of SMA, and their caregivers, the opportunity to network and learn about the latest advances in treatment, care, advocacy, and support. This local engagement highlights Cure SMA’s core values and further strengthens the bonds that make our communities so vibrant!

These half-day events offer informative presentations from local and national experts who have years of experience specific to spinal muscular atrophy. Each summit presents a unique agenda of topics ranging from research, care, stress management, nutrition and much more! Cure SMA greatly values attendee feedback and strives to continuously add new topics and to build locally customized agendas.

This is a free program which includes breakfast, lunch, and parking for all attendees. Childcare and entertainment will not be available at the Summit of Strength, but children are welcome to attend with a parent or caregiver. We would also like to make our attendees aware that Cure SMA will be executing necessary COVID-19 precautions per CDC guidelines.

Important Attendee Information

As of August 17, per the city of New York, people 12 and older are required to show proof they have received at least one dose of a COVID-19 vaccine authorized for emergency use by the FDA or WHO. This requirement extends to Cure SMA’s Summit of Strength which is being held at the New York City Marriott Marquis on September 25, 2021. To be able to attend the event, anyone 12 years and older will be required to show their proof of vaccination.

For proof of vaccination, you can use:

  • CDC Vaccination Card. A photo or photocopy of this card is also acceptable 
  • NYC Vaccination Record or other official immunization record from within or outside the U.S., including from your health care provider. A photo or photocopy of this card is also acceptable. If you are unable to get this record, call 311. 
  • NYC COVID Safe App: Android | iOS. You can upload to this app a photo of your CDC vaccination card or other official record, along with your photo ID. 
  • Excelsior Pass (or Excelsior Pass Plus). To use this app, you will need the phone number or email address associated with your NYC vaccination record. If you are unable to use this app, try one of the other options listed above.

If you have any questions, please contact Cure SMA at 800-886-1762 or by email,

Disclaimer: Medical or legal opinions expressed or shared should not be substituted or interpreted as personal medical or legal advice. Please consult your healthcare provider regarding any health-related concerns.

The health, safety, and well-being of the entire SMA community is important to us. Cure SMA is continually monitoring and evaluating the impact of COVID-19 in the U.S. and in-person summit events are subject to change.

Check back soon for an agenda detailing the topics that will be covered at this summit.

Event Info

Saturday, September 25, 2021
New York Marriott Marquis
1535 Broadway
New York, NY 10036

Event Schedule

Start Time: 9:00AM
End Time: 1:00PM