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Jacob Isaac Rappoport Foundation Campaign
to Cure SMA

Why We Fundraise

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Funding of Research and Family Programs

In addition to supporting basic research and drug discovery initiatives, JIRF spends nearly $50,000 to fund invaluable programs each year:

  • $25,000 ensures each newly diagnosed Type I child receives an enormous package of appropriate toys and equipment. To date, JIRF has funded over 1,100 packages. Read more about the impact of these packages on SMA families.

  • $15,000 provides childcare at the Cure SMA conference so that parents can attend important workshops and lectures while their affected children are entertained and safe.

  • $3,750 sponsors a Type I Reception at the Cure SMA conference, which provides an emotionally supportive environment for families to connect and share their unique experiences.

  • $3,750 sponsors a Teen Social at the Cure SMA conference to provide a fun event exclusively for teens.

Cure SMA is dedicated to the treatment and cure of Spinal Muscular Atrophy (SMA)—a disease that takes away a person’s ability to walk, eat, or breathe. 8 million Americans carry the gene that causes SMA , and it is the number one genetic cause of death for infants.

Since 1984, we’ve directed and invested in comprehensive research that has shaped the scientific community’s understanding of SMA. We are currently on the verge of breakthroughs in treatment  that will strengthen our children’s bodies, extend life, and lead to a cure.

We have deep expertise in every aspect of SMA—from the day-to-day realities to the nuances of care options—and until we have a cure, we’ll do everything we can to support children and families affected by the disease.

Learn more about how you can help us reach a treatment and cure at www.cureSMA.org.

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Total Raised:

$48,228.00

96% Raised of $50,000.00 Goal

© 2019 Cure SMA | Cure SMA is recognized as tax-exempt under section 501(c)(3) of the Internal Revenue Code. EIN: 36-3320440. | Privacy Policy