Fundraising page sub header

Jacob Isaac Rappoport Foundation Campaign
to Cure SMA

Shaina & Adi Rappoport - Florida 2010.jpg

About The Jacob Isaac Rappoport Foundation

After Jacob's death, we knew that we could not stand by and watch other babies die the same way Jacob did. We formed The Jacob Isaac Rappoport Foundation (a 501(c)(3) organization), which funds SMA research and programs that support affected families. Since its inception in 2002, the Foundation has raised $1.5 million.

When Jacob was diagnosed, there was no Facebook, chat rooms, or clinical trials- and a treatment was a dream at best. We relied on telephone conversations with other SMA parents to gain knowledge about how to care for our son, and our newly-found knowledgeable, compassionate family at Cure SMA.

At Jacob’s funeral, we promised him that we would honor his memory by dedicating ourselves to finding a cure for the disease that took his life, and to helping families whose lives have been shattered by this disease. For the past 15 years, the Foundation has had a significant impact on the progress toward a treatment and a cure, and has made a difference in the quality of life of thousands of SMA babies. We can not thank you enough. It is our hope that you will continue to answer our plea, as you have done each year.
Thank you!

Donate Button 
Donate to 

this campaign

Total Raised:


96% Raised of $50,000.00 Goal

© 2019 Cure SMA | Cure SMA is recognized as tax-exempt under section 501(c)(3) of the Internal Revenue Code. EIN: 36-3320440. | Privacy Policy