Why We Golf
The Rogowicz, Butler, and Spiegel families have seen the full spectrum of what SMA can do to our children and families. Mark Butler was taken from his family at six months old, 29 years ago. Billy Spiegel is 18, holding onto every day he can with the assistance of constant medical care from his parents. Billy was never able to walk. He communicates by a Dynavox VMSA machine, using eye movement and just a couple of fingers. He’s a strong young man battling a terrible disease with the help of his loving family.
Lauren Rogowicz lost her ability to walk at age 14. She has SMA type III, which is a less severe form of the disease. Lauren is now 25 years old, confined to a wheelchair, and needs fulltime assistance for basic needs which we all take for granted. Even with her daily challenges, Lauren is very thankful for the abilities she does have and sees herself as “handicap-able.”
Inspired by Billy’s and Lauren’s strength to fight against the ravages of SMA and the memory of little Mark Butler, our families have organized the Rogo Cup to Cure SMA. Thanks to all our supporters! Together we can Cure SMA!