Walk N Roll Event Title

2019 West Virginia Walk-n-Roll

Saturday, May 18, 2019 | 9:00AM - 12:00PM
Edith Barill Riverfront Park | Star City, WV

 

Why We Walk

2019 WV WNR why we

"I walk for Alexander, who has SMA, type I, my little super hero!" - Autum Johnson

“I walk to raise awareness and I walk for each and every person affected by SMA. I walk for a cure.” - Caressa Delaney

“We walk for Isaiah in the hopes to find a cure and raise awareness of this awful disease. Isaiah's Warriors are willing to fight for a cure for SMA.” - Steph Leasure

“I walk for my son, Owen, who lost his battle to SMA at four months old.” - Ashley Close


Cure SMA is dedicated to the treatment and cure of Spinal Muscular Atrophy (SMA)—a disease that takes away a person’s ability to walk, eat, or breathe. 8 million Americans carry the gene that causes SMA , and it is the number one genetic cause of death for infants.

Since 1984, we’ve directed and invested in comprehensive research that has shaped the scientific community’s understanding of SMA. We are currently on the verge of breakthroughs in treatment  that will strengthen our children’s bodies, extend life, and lead to a cure.

We have deep expertise in every aspect of SMA—from the day-to-day realities to the nuances of care options—and until we have a cure, we’ll do everything we can to support children and families affected by the disease.

Learn more about how you can help us reach a treatment and cure at www.cureSMA.org.

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Total Raised:

$13,572.00

90% Raised of $15,000.00 Goal

© 2019 Cure SMA | Cure SMA is recognized as tax-exempt under section 501(c)(3) of the Internal Revenue Code. EIN: 36-3320440. | Privacy Policy