Walk N Roll Event Title

2019 Zane's Run

Sunday, September 29, 2019 | 9:00AM - 11:00AM
Great Valley Middle School | Malvern, PA


Why We Walk

2019 zane's run why we

“Hi. My name is Zane. My Mommy always told me I was a beautiful baby girl with big, brown eyes. I loved to smile. I was told it made people happy. I also loved to be held and be around others. My family and friends put on this event in Memory of me to help present- day children & families Fight SMA. I hope you will join the Fight. Thank you for supporting me, my family, and this charitable cause. Hugs from Heaven…”

Zane was diagnosed with the disease spinal muscular atrophy (SMA) type I when she was six weeks old. Typically, babies with SMA type 1 have a life expectancy of one year. Constant monitoring and medical assistance is vital. Since the time of Zane’s diagnosis, the Schmid Family has worked closely with Cure SMA. The proceeds of this event will go towards purchasing medically necessary equipment needed for children with SMA, awareness materials, and research.

Zane fought her disease bravely each day, but in the end, her tiny little body couldn’t fight anymore. She passed away peacefully in the arms of her parents surrounded by loved ones. She joined the Angels on June 18, 2009: she was five months and 16 days old.

The Schmid Family remains hopeful of a cure! In the meantime, they educate the community and provide support for families and children currently living with SMA. Hillary, Keith and Avery joyously welcomed twin boys, Brennen & Braxton in December 2011. Thankfully, both boys are SMA free and are happy, thriving little boys.

Cure SMA is dedicated to the treatment and cure of Spinal Muscular Atrophy (SMA)—a disease that takes away a person’s ability to walk, eat, or breathe. 8 million Americans carry the gene that causes SMA , and it is the number one genetic cause of death for infants.

Since 1984, we’ve directed and invested in comprehensive research that has shaped the scientific community’s understanding of SMA. We are currently on the verge of breakthroughs in treatment  that will strengthen our children’s bodies, extend life, and lead to a cure.

We have deep expertise in every aspect of SMA—from the day-to-day realities to the nuances of care options—and until we have a cure, we’ll do everything we can to support children and families affected by the disease.

Learn more about how you can help us reach a treatment and cure at www.cureSMA.org.

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Total Raised:


107% Raised of $40,000.00 Goal