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    • About SMA
      • Overview
      • Types of SMA
      • Genetics
      • Testing & Diagnosis
      • Newborn Screening
    • Living with SMA
      • Overview
      • Newly Diagnosed
      • Infants and Children
      • Teens and Adults
      • Carriers of SMA
    • Treatment
      • Overview
      • Spinraza
      • Zolgensma
      • Risdiplam
    • Handling Medical Issues
      • Overview
      • Musculoskeletal
      • Nutrition
      • Breathing
      • Quality of Life
    • FAQs & Glossary
      Care Series Booklets
      Directions Newsletters
  • Support & Care
    • SMA Care Center Network

      Local, evidenced-based care centers, designed to improve the lives of those with SMA.

      LEARN MORE
    • Local Support

      Cure SMA offers a variety of ways to get involved and connect with your local community.

      Find out more

    • National Support

      There are nationwide programs available for all families affected by SMA in the US.

      Find out more

    • Treatment Centers
      News
      Contact Us
  • Research
    • Our Strategy
      • Overview
      • Basic Research
      • Drug Discovery
      • Clinical Trials
    • Latest Advances
      • Overview
      • Therapeutic Approaches
      • SMA Drug Pipeline
    • For Researchers
      • Overview
      • Funding Opportunities
      • Research & Clinical Care Meeting
      • Recruit for Clinical Trials
    • Research Publications

      Read the latest issue of Compass, Cure SMA’s research publication.

      Learn more
  • Healthcare Providers
    • About SMA for HCPs
    • Research & Clinical Care Meeting
    • Clinical Guidelines
    • Current Educational Programs
  • Get Involved
    • Ways to Give
      • Overview
      • Donate
      • Fundraise
      • Planned Giving
      • Volunteer
    • Event Calendar
      • Cure SMA Events
      • Annual SMA Conference
    • Advocacy

      Many state and federal policies impact nearly all aspects of life for those affected by SMA.

      Learn more
    • Cure SMA Store

      Support our mission and raise awareness with Cure SMA merchandise.

      Shop now
  • About Cure SMA
    • Mission and Values
    • Team and Board
    • National Partners
    • Chapters
    • Annual Reports/Financials
    • Media
    • Contact Us
  • DONATE
Donate

Our New Year's Resolution - FIND A CURE!

Donate Now
Christmas
Christmas

For us, every holiday season includes a visit to the cemetery. This year marked a sad milestone: five years since we lost our beloved little boy Wyatt Teagan Arnold to Spinal Muscular Atrophy. So our goal this giving season is $1,000 for every year we've missed with our little boy = $5,000. PLEASE help us get there!

Our children know their big brother as an angel who gets the balloons they release into the sky when we visit his grave. They know he is in heaven, "high up in the sky." But he is still very present with us, every day, reminding us to be thankful for what we have and to help others, especially those families facing a similar fate.

Wyatt died right before Christmas. Just the other day, I heard of the passing of two more SMA angels and it saddens me to know very much how their holidays are going to be this year.

There is, fortunately, some very good news. Right now there's a drug in clinical trials that is showing incredible promise. I have seen babies with the same type of SMA that Wyatt had move their arms and legs freely, sit up mostly unassisted and hold up their heads - things Wyatt never even came close to doing. Clinical trials are expensive. Research is expensive. And CureSMA has been an incredible support in funding the development of this and other treatments in the pipeline to cure and treat SMA.

CureSMA also provides support to families. It gives them information on how to find the right doctors, what your treatment options are and connects you with resources to get low-cost or even free equipment.

 So, please remember CureSMA in your holiday and year-end charitable giving. And remember Wyatt. In fact, even if you don't donate, please just think of Wyatt and check out his sly little grin. Because that's how the little dude lives on, and that's really all any mom could ask for.

Happy Holidays and here's wishing you a happy, healthy New Year.

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Donate Now
Personal Progress:
of Goal
$14,528 Raised
$5,000.00
Fundraising Honor Roll
The Walt Disney Company Foundation
$8,500
Paula Lavigne
$3,500
Anonymous
$1,500
Kay Lavigne
$300
Nedra Pickler
Arty Berko
$118
Brian Sharp
$50
Damien Stednitz
$50
Steven Berkowitz
Caitlin Sadlemyer
$50
Gannett Foundation
$50
Anonymous
$50
Adam Schefter
Jason Grotelueschen
$50
Michael Stucka
Kelly Ekue
Amber Holzhey

Cure SMA

Cure SMA
925 Busse Road, Elk Grove Village, IL 60007

(800) 886-1762

info@curesma.org

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