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      Local, evidenced-based care centers, designed to improve the lives of those with SMA.

      LEARN MORE
    • Local Support

      Cure SMA offers a variety of ways to get involved and connect with your local community.

      Find out more

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      There are nationwide programs available for all families affected by SMA in the US.

      Find out more

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      • Recruit for Clinical Trials
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      Read the latest issue of Compass, Cure SMA’s research publication.

      Learn more
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      Learn more
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UPB Walk and Roll to CURE SMA ~ September 30, 2017 at 11 am

Donate Now
Kyle Bickel, SMA type 3
Kyle Bickel, SMA type 3

Dear Friends and Family,

Please help the United Parish of Bowie raise money to find a cure for Spinal Muscular Atrophy, the number 1 genetic killer of infants.  Our son, Kyle, is 13 years old and a strong Type 3.  With the tremendous support we received at last year's UPB vs SMA fundraiser along with other fundraisers throughout the country over the years, the first drug, Spinraza, was approved by the FDA in December 2016.  Thankfully our son has already received four treatments and he is scheduled to receive his fifth September 28th.  

Spinraza works to stop the progression of this devastating disease and may potentially improve strength. This drug has been life changing for those with SMA, especially for those children with Type 1.  However, this is not a cure and there is still work to do! Researchers are working to find more treatment options and eventually, a cure.  Please help us! All funds raised at this event will go directly to Cure SMA. Any amount donated would be wonderful!

The United Parish of Bowie will be hosting a Walk and Roll to CURE SMA on Saturday, September 30, 2017 at 11:00 am. Please bring your family and friends and join us for food, games, a bounce house, face painting, crafts and more! 

We hope to see you on September 30th! (UPB 2515 Mitchellville Road Bowie, MD 20716)

 

Love,

Matt and Chrissie Bickel

 

 

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Donate Now
Personal Progress:
of Goal
$4,540 Raised
$8,000.00
Fundraising Honor Roll
Our Little Jewels Inc
$500
Eric Bickel
Carol Zuber
$200
Shirley Bickel
$200
Nikki Hillary
$150
Maureen Grayzeck
$100
Janice Sheppard
$100
Medessa Burian
$100
Sharon Scarselli
$100
Sudha Hillary
$100
Florence Burian
Joe & Elaine Strauss
$100
Linda Corley
$100
Mark Smith
$100
Ronald Klotz
$100
Lourdes Flaim
$100
Victor Shin
$100
Kevin Eades
$100
Susan Kennedy
$100
KATHERINE MONTAGUE
$100
Gene Barbato
$100
Mary Munnelly
$100
Joanne Sprunk
$100
Ronald Showell
$100
Charissa Loera
Mirtha Mcgovern
$75
Natifia Mullings
$50
Anne & Jim Dillon
$50
Dennis Burian
James Palmer
$50
Shane Denman
$50
Brenda Gauna
$50
Richard Brzozowski
$50
Sharon Pasterick
$50
Robin Burgess
$50
Jennifer Windsor
$50
James Roper
$50
Nicole Wilson
$50
Nicholas Mautino
$50
Marianne Markey
$50
Jenny Hsieh
$30
Phaedra McNair
$30
Wilma Bishop Dean
$25
Elizabeth Ruddy
$25
Christine Bickel
$25
Elizabeth Fine
$25
Matthew Buckley
Mike Mastrantuono
$25
Lynn Lipsey
Debbie Del Busto
$25
Anita Garcia
Daniel Beall
$25
Jim Monahan
$25
Michele Neville
$25
Michele Vicino-Coleman
$25
CustomInk LLC
$20
John Oputa
$10

Cure SMA

Cure SMA
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