Welcome to Sarah's Personal Fundraising Page
Please join me and support Cure SMA by making a contribution to my personal fundraising page for the 2016 Philadelphia 5K, I'll be running in honor of Graham Vollmer again this year.
Graham's mom, Adrienne, and I met in college as Management Ambassadors at Purdue University and have remained in touch, thanks to Facebook, since then. Unfortunately, like so many stories of an SMA diagnosis, Adrienne and her family were devastated by the news of their youngest son being diagnosed with SMA type I in July. They had never heard of the disease and no clue that either of them were carriers.
Learn more about Graham's story by following "Prayers for Graham" on Facebook.
Spinal muscular atrophy is the number one genetic cause of death for infants, and approximately 1 in every 50 individuals is a genetic carrier for SMA. But there’s great reason for hope. We know what causes SMA and what we need to do to develop effective treatments.
We’re getting closer and closer to an FDA-approved therapy, with 18 ongoing drug programs—and 7 of those are now in clinical trials.
I’ve chosen Cure SMA because they are uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. They’ve already invested $60 million in research.
They also provide vital support for families living with SMA, improving their quality of life today. And every year they host the largest SMA conference in the world, bringing families together with the leading SMA researchers.
Making a donation to Cure SMA is easy, secure and completely confidential. Just click on the link and follow the steps!
Thank you again for your personal gift in honor of Graham and all of those affected by SMA!
My Personal Web Log