Welcome to my personal page!
Please join me and support Cure SMA by making a contribution to my personal fundraising page for the 2015 Friends of Sofia Equine Event. An equine trail ride, in honor of Sofia Wylie, with one goal: to fund a cure for spinal muscular atrophy (SMA).
“Why we Ride” ~ We ride to fly, to feel, to touch, to breathe, to laugh, to soar, to overcome, to relax, to get away, to belong, to feel strong, to heal, to love and to be loved back. We ride to live and together, to fight to eliminate Spinal Muscular Atrophy.
Several months ago I knew nothing about SMA, until a friend’s granddaughter, Sofia, was diagnosed with this rare genetic disease. To learn that SMA paralyzes one’s ability to walk, eat, or breathe and that there is no cure and no treatment – I wanted to rally fellow equestrians together in an effort to show support, raise funds, awareness and most importantly, HOPE.
There’s great reason for hope. We know what causes SMA and what we need to do to develop effective treatments. Cure SMA is getting closer and closer to an FDA-approved therapy, with 17 ongoing drug programs—and six of those are now in clinical trials.
Cure SMA also provides vital support for families living with SMA, improving their quality of life today. And every year they host the largest SMA conference in the world, bringing families together with the leading SMA researchers.
Making a donation to Cure SMA is easy, secure and completely confidential. Just click on the link and follow the steps!
Thank you again for your personal gift to support our efforts to fund vital research and family support programs for those affected by SMA.
Bit by Bit Farm ~ Team Captain