Kristene the Machine
Please join me and support Cure SMA by making a contribution to my personal fundraising page.
I am supporting Cure SMA because Spinal Muscular Atrophy personally affects me, and a significant number of individuals and families that I care about. Spinal Muscular Atrophy is the number one genetic cause of death for infants, and approximately 1 in every 50 individuals is a genetic carrier for SMA. Those individuals who live with spinal muscular atrophy, are living with a disease that progressively and continuously robs them of their ability to walk, sit, eat, and eventually breathe on their own. But there is great reason for hope. We know what causes SMA and what we need to do to develop effective treatments.
This past December, CureSMA celebrated one of our greatest milestones with the approval of the first EVER pharmaceutical treatment for Spinal Muscular Atrophy! This was in no small part, due to the efforts of the families and individuals who came together and supported the fundraising efforts of events like this one, across the country. We are getting closer and closer to another FDA-approved therapy, with 17 ongoing drug programs. Six of those are now in clinical trials.
I’ve chosen Cure SMA because they are uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. They’ve already invested $57 million in research.
They also provide vital support for families living with SMA, improving their quality of life today. Every year they host the largest SMA conference in the world, bringing families together with the leading SMA researchers, providing informative seminars on developments in research, solidifying an amazing support network, and giving hope toward a better and brighter future for those living with the disease, and those newly diagnosed families struggling to understand what their or their childs future might hold.
Making a donation to Cure SMA is easy, secure and completely confidential. Just click on the link and follow the steps!
Thank you again for your personal gift to support my efforts to fund vital research and family support programs for those affected by SMA.