2017 St. Louis Walk-n-Roll

Legs for Luke

Dear Family and Friends, please join us and support Cure SMA by making a contribution to my personal fundraising page or our team "Legs for Luke."

On January 12, our grandson Luke was diagnosed with SMA.  We are supporting Cure SMA because spinal muscular atrophy is the number one genetic cause of death for infants, and approximately 1 in every 50 individuals is a genetic carrier for SMA.  But there’s great reason for hope. We know what causes SMA and what we need to do to develop effective treatments.

As of December 23 2016 the FDA approved a drug that was in clinical trials called Spinraza. Luke was very lucky to begin his treatment on February 21, 2017.  We have chosen to become involved for Luke and many other families faced with this devastating disease.  Cure SMA is uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. They’ve already invested $57 million in research. 

They provide vital support for families living with SMA, improving their quality of life today. Every year they host the largest SMA conference in the world, bringing families together with the leading SMA researchers.

Although we would love to have all of our family and friends join our team for the walk, we know that is impossible. If you can make a donation regardless of the size it will be greatly appreciated.

Making a donation to Cure SMA is easy, secure and completely confidential.  Just click on the link and follow the steps!

Thank you again for your personal gift to support our efforts to fund vital research and family support programs for those affected by SMA. If you are unable to contribute please keep all of us in your prayers.

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