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Recently, our good friend's young son was diagnosed with Spinal Muscular Atrophy (SMA), a genetic disease that causes progressive loss of muscle function. We have seen the impact it has had on him and his family. Many people have never heard of SMA and this underrecognized disease lacks the necessary funding to further improve treatments and find a cure. We see how badly a cure is needed, for our friend's son, and for all affected by this disease.
Please consider donating to this cause (more about the organization below). Thank you!
A bit about Cure SMA Organization:
SMA impacts the lives of thousands of people and Cure SMA is an irreplaceable resource. By providing services like care packages for newly diagnosed families, teens, and adults, local Summit of Strength programs, an equipment pool, and the Annual SMA Conference - Cure SMA supports the community as they navigate life with SMA. Cure SMA has also invested more than $80 million in research and has funded half of all the ongoing new drug programs for SMA, including Spinraza and Zolgensma, two FDA-approved therapies for SMA.