Bravery for Cole
Stephanie Geraghty and Lauri Filar are running the Denver Rock 'n' Roll Half Marathon and fundraising for Cure SMA in honor of Cole Geraghty and the SMA community. Their inspiration, Cole, is 10 years old and was diagnosed with SMA Type 2 when he was 2 years old. Cole is a funny, smart, happy-go-lucky kid that lives life to the fullest despite his challenges. He loves baseball, swimming, video games, 4H, math, recess, and wolves. Check out Stephanie's personal page to learn more about Cole!
In case you are not familiar with this disease, Spinal Muscular Atrophy is a genetic neuromuscular disorder that causes the muscles in the body to weaken and atrophy. Many people with SMA are unable to breathe, eat, or walk on their own. A surprising 1 in 50 people in the United States are genetic carries. Cole's parents, Brian and Stephanie, are both carriers but were not aware until Cole was diagnosed.
Because of organizations like Cure SMA, ground-breaking research and drug therapies are being developed all over the world to combat this disease. Cole has been in a study for a drug called Spinraza since 2015. He has maintained strength that otherwise would have been lost. The study has not always been easy but he has shown great bravery to persevere. He is paving the way for people all over the world to receive life-changing treatment. Therefore, "bravery" is our theme this year and we will all do our best to be brave and be world-changers just like Cole.
Stephanie has led 5 prior fundraisers in Cole's honor and raised over $20,000 for Cure SMA. This year, she is joining forces with Lauri! Lauri is a study coordinator for the Spinraza extension study at Colorado Children's Hospital. She helps conduct ground-breaking research that positively influences the SMA community now and into the future.
The Geraghtys and Lauri have also become good friends over the years. Lauri took up running this past year as a way to meet fitness goals and she is excited to set and reach big racing goals in 2019, including a full marathon this Fall! Stephanie has been running since a young age and is making a return to the racing circuit to push Cole for this race, their first finish since 2016. This will be Cole's fourth half. He loves to watch the crowd and receive his medal at the end.
SMA impacts the lives of thousands of people like Cole, and Cure SMA is an irreplaceable resource. Cure SMA has invested more than $75 million in research and has funded half of all the ongoing new drug programs for SMA, including Spinraza, the first-ever approved therapy for SMA. Please consider making a donation today of $25 or more to support "Bravery for Cole" and Cure SMA so they can keep providing these important programs and services.Thank you for joining us in the fight against SMA.
BE BRAVE, Steph, Lauri, and Team "Bravery for Cole"