Pat and Dick are again organizing the NorCal Walk-n-Roll. Please join us and support Cure SMA by making a contribution through our fundraising page for Team Madison. If possible, come to this fun-filled day at beautiful Kennedy Grove on August 25!
Update on our granddaughter, Madi: She completed her freshman year at Thunderbird High School in Phoenix where she was very active in student government, yearbook club and French club. She especially enjoyed her classes in Science and English. She likes writing, movies, traveling, and being a girls’ basketball team manager. Madi is very outgoing and witty and is a very confident public speaker. She enjoys serving and helping others and meeting new people through Cure SMA and the Arizona chapter of MDA where she is the Special Events Ambassador. We are very proud of Madi!
Madi has a busy summer planned. First a week at Ryan House, (respite center in Phoenix), then MDA camp (“the best week of my year”), then off to Dallas for the Cure SMA conference, and lastly an extended vacation in South Dakota with her aunts and cousins. We will join Madi and her family in Dallas where we will meet other SMA families and researchers who are developing new solutions for SMA.
We are supporting Cure SMA because spinal muscular atrophy is the number one genetic cause of death for infants, and approximately 1 in every 50 individuals is a genetic carrier for SMA.
But here’s great reason for hope. Thanks to the dedication of our community and the ingenuity of our researchers, we now have the first-ever approved treatment that targets the underlying genetics of SMA. But our work is not done. We know what we need to do to develop and deliver effective therapies. And we’re on the verge of further breakthroughs that will continue to change the course of SMA for everyone affected—from infants to adults—and eventually lead to a cure.
We have chosen Cure SMA because they are uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. They’ve already invested $70 million in research.
They also provide vital support for families living with SMA, improving their quality of life today. And every year they host the largest SMA conference in the world, bringing families together with the leading SMA researchers.
Making a donation to Cure SMA is easy, secure and completely confidential. Just click on the link and follow the steps!
Thank you again for your personal gift to support our efforts to fund vital research and family support programs for those affected by SMA.