Now, with an FDA-approved treatment (Spinraza) and 19 ongoing drug programs - five now in clinical trial - we are closer than ever before to a cure for SMA. Melia has been receiving Spinraza for over a year now and the progress has been amazing. We are so grateful!
I’ve chosen Cure SMA because they are uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. They’ve already invested $70 million in research.
They also provide vital support for families living with SMA, improving their quality of life today. And every year they host the largest SMA conference in the world, bringing families together with the leading SMA researchers. We just got back from our first conference in Dallas and it was an incredible experience for the entire family.
Thank you again for your support. Not only will your participation fund vital research and family support, it will also provide hope to the entire SMA community.
Here are the details for the walk:
- Date: Saturday, August 25
- Time: 10:00 am - 1:00 pm
- Location: Kennedy Grove Regional Recreation Area / 6531 San Pablo Dam Road, El Sobrante, CA 94083
- Registration Fees: Adults $25, Child 12 & Under $10 (fee includes T-shirt, snack and lunch)
Emmanuel, Danielle, Marin & Melia