2017 Northern California Walk-n-Roll
Golden Gate Park
Welcome to Linda's page for Jessica's Joyful Team
Please join me and support Cure SMA by making a contribution to my personal fundraising page for Jessica's Joyful Team for the 2016 Northern California Walk n Roll.
In 2003, when my daughter Jessica was a year old, we started this walk to help fund a cure for Spinal Muscular Atrophy. As a parent who was told there was no hope, I had to do something. I'm thrilled this walk has continued and that research is progressing. Jessica had SMA Type 1. She was an intelligent, happy, and playful child. Jessica outlived her initial prognosis and survived to just before her 4th birthday. I continue to support Cure SMA to help everyone currently living with SMA and those yet to be born to have a better prognosis. It is the way we can continue to honor Jessica's memory.
I’m supporting Cure SMA because spinal muscular atrophy is the number one genetic cause of death for infants, and approximately 1 in every 50 individuals is a genetic carrier for SMA. But there’s great reason for hope. We know what causes SMA and what we need to do to develop effective treatments.
The first FDA-approved therapy was approved in December 2016! There are 18 ongoing drug programs—and six of those are in clinical trials. A combination therapy is what is expexted to work the best and that research is ongoing.
I’ve chosen Cure SMA because they are uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. They’ve already invested $57 million in research.
They also provide vital support for families living with SMA, improving their quality of life today. And every year they host the largest SMA conference in the world, bringing families together with the leading SMA researchers.
Making a donation to Cure SMA is easy, secure and completely confidential. Just click on the link and follow the steps!
Thank you again for your personal gift to support my efforts to fund vital research and family support programs for those affected by SMA.