Team Erin Go Bragh
The Cure SMA Chesapeake Chapter Walk n Roll will be Saturday, April 27, 2019 at 9:00 AM in Mt Airy, MD. It's not too early to register to be apart of our team and walk with us in memory of ERIN TRAINOR. If you can't join us on May 19th consider showing your support for Team Erin Go Bragh by donating to our team.
In February 1994 my sister, Barbara and brother in law, Eugene lost their five-month old daughter Erin to Spinal Muscular Atrophy. The past 25 years, family and friends have joined them in raising awareness and funds for research for SMA. Over $3 million has been raised for Cure SMA through our annual events such as the Chesapeake Crab Feast and the Chesapeake Charity Golf Classic. The Chesapeake Chapter will hold its Walk and Roll on April 27th in Mt Airy, Md. I have created Team ERIN Go Bragh (erin go bragh in gaelic means "Ireland forever" so Erin forever) in memory of my niece Erin.
Join our team today or make a donation towards our efforts.I'm supporting Cure SMA because spinal muscular atrophy is the number one genetic cause of death for infants, and approximately 1 in every 50 individuals is a genetic carrier for SMA. But there's great reason for hope. We know what causes SMA and what we need to do to develop effective treatments.
Thanks to dedication of our community and the ingenuity of our researchers, we know we have the first-ever approved treatment that targets the underlying genetics of SMA. But our work is not done. We know what we need to do to develop and deliver effective therapies. And we're on the verge of further breakthroughs that will continue to change the course of SMA for everyone affected - from infants to adults - and eventually lead to a cure.
I've chosen Cure SMA because they are uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. They've already invested $70 million in research and have funded half of all the ongoing new drug programs for SMA.
Cure SMA is an irreplaceable resource for famlies facing SMA. They also provide vital support for nearly 4,000 families annually through informational packets, newly diagnosed care packages, local Cure SMA Summit of Strength programs, Annual SMA Conference, and equipment.
To support me, just click the donate button and follow the steps!
Thank you again for your gift to support my efforts to fund vital research and family support programs for those affected by SMA.