Team ERIN Go Bragh
In February 1994 my sister, Barbara and brother in law, Eugene lost their five-month old daughter Erin to SMA, Type I. The past 26 years, family and friends have joined them in raising awareness and funds for research for SMA. Over $3 million has been raised for Cure SMA through our annual events such as the Chesapeake Crab Feast and the Chesapeake Charity Golf Classic in hopes to help find a cure for SMA. The Chesapeake Chapter will hold its Annual Walk and Roll on April 26, 2020 in Mt Airy, Md. I have created Team ERIN Go Bragh (erin go bragh in gaelic means "Ireland forever" so Erin forever) in memory of my niece Erin. Join our team today or make a donation towards our efforts to find a cure. Together we will find a cure and make today a breakthrough.
I am fundraising for Cure SMA because they are leading the way to a world without spinal muscular atrophy. SMA is the number one genetic cause of death for infants and 1 in 50 people in the United States is a genetic carrier.
SMA impacts the lives of thousands of people and Cure SMA is an irreplaceable resource. By providing services like care packages for newly diagnosed families, teens, and adults, local Summit of Strength programs, an equipment pool, and the Annual SMA Conference - Cure SMA supports the community as they navigate life with SMA. Cure SMA has also invested more than $80 million in research and has funded half of all the ongoing new drug programs for SMA, including Spinraza and Zolgensma, two FDA-approved therapies for SMA.
Join me by registering or donating today! Make a donation of $25 or more to support Cure SMA so they can keep providing these important programs and services for the community. Thank you for joining me in the fight against SMA!
Event Name: 2020 Chesapeake Walk-n-Roll
Venue: Old National Pike
Address: 12406 Old National Pike, Mt Airy, MD 21771