First I want to thank you all for your continued support of our Cure SMA walk-n-roll and our family through the years! As you may know, both of our adult children, Emma and Nick have Spinal Muscular Atrophy type 1.  SMA is the number one genetic cause of death for infants and 1 in 50 people in the United States is a genetic carrier. We were told that neither of our children would live past age 2. Miraculously they are 20 and 18 years old now!  This could only occur with blessings and miracles from God first, the fighting spirits of our children, as well as information from friends of families who have pioneered the way before us and for Cure SMA who has helped fund many of the new research projects that have been happening. Our children have already benefitted from two of the drugs that are currently on the market, which is a miracle in itself as 20 years ago, a drug for SMA was unheard of. I am fundraising for Cure SMA because they are leading the way to a world without spinal muscular atrophy.

SMA impacts the lives of thousands of people and Cure SMA is an irreplaceable resource. By providing services like care packages for newly diagnosed families, teens, and adults, local Summit of Strength programs, an equipment pool, and the Annual SMA Conference - Cure SMA supports the community as they navigate life with SMA. Cure SMA has also invested more than $80 million in research and has funded half of all the ongoing new drug programs for SMA, including Spinraza and Zolgensma, two FDA-approved therapies for SMA.

Join me by registering or donating today! You can register for free and raise money and walk your neighborhood or make a donation of $25 or more to support Cure SMA so they can keep providing these important programs and services for the community. Thank you for joining me in the fight against SMA!