Welcome to My Personal Page
I am fundraising for Cure SMA because they are leading the way to a world without spinal muscular atrophy. SMA is the number one genetic cause of death for infants and 1 in 50 people in the United States is a genetic carrier.
SMA made a direct impact on our family 12 years ago, when our son Julian was diagnosed with the disease. Three years later, our daughter Siena was determined to be a carrier of the gene.
SMA impacts Julian and thousands of children and adults with SMA. Cure SMA is an irreplaceable resource. They have supported our family tremendously as we do all that we can to help Julian naviagate this life with SMA. They have invested more than $75 million in research and have funded half of all the ongoing new drug programs for SMA, including Spinraza, which Julian started in April of 2017.
Derek, Julian, Siena and I feel quite blessed by the constant support of our friends and family. Please join us by registering or donating today! Make a donation of $25 or more to support Cure SMA so they can keep providing these important programs and services for our son and the greater community. Thank you from the bottom of our hearts! -The Lewis Family