Welcome to My Personal Page
I am walking and rolling to support Cure SMA for our annual walk in June.
I’m serving on the Board for a nonprofit organization called Cure SMA. My niece Emma and nephew Nick both have spinal muscular atrophy and this organization funds research and provides services for people with SMA.
SMA is a progressive neurodegenerative disease that affects the motor nerve cells in the spinal cord and impacts the muscles used for activities such as breathing, eating, crawling and walking. It is the number one genetic cause of death for infants.
The research Cure SMA has invested in has yielded three, FDA-approved treatments that have changed the disease and what life looks like for a patient with SMA. It also has succeeded in making newborn screenings standard in many states which can help with early treatment.
There are 3 areas where we still need help…
3. Developing our local operations in key markets to maximize our fundraising efforts and provide localized support to the SMA communities.
Thanks for your consideration of support by making a donation to my fundraising page today!
Event Name: 2021 Cincinnati Walk-n-Roll
Return to main event site events.curesma.org/CincinnatiWalk