Welcome to Carole's Personal Page
I am walking in the Chesapeake Walk-n-Roll fundraiser for Cure SMA because they are leading the way to a world without spinal muscular atrophy. SMA is the number one genetic cause of death for infants and 1 in 50 people in the United States is a genetic carrier. I joined Team Emmy to support my cousins Julie and Terry who lost their precious baby girl Emmy at the age of one.
SMA impacts the lives of thousands of people and Cure SMA is an irreplaceable resource. By providing services like care packages for newly diagnosed families, teens, and adults, local Summit of Strength programs, an equipment pool, and the Annual SMA Conference - Cure SMA supports the community as they navigate life with SMA. Cure SMA has also invested more than $75 million in research and has funded half of all the ongoing new drug programs for SMA, including Spinraza, the first-ever approved therapy for SMA.
Join me by registering or donating today! Please consider making a donation to support Cure SMA so they can keep providing these important programs and services for the community.
Thank you for joining me in the fight against SMA!