2017 Northern California Walk-n-Roll
Golden Gate Park
Welcome to My Personal Page
I was diagnosed with SMA Type 3, three years ago in May of 2014. The diagnosis meant a lot of changes in my life and from there I didn't know what to do. I was directed to Cure SMA and they helped to explain everything from what the diagnosis meant for me and my future to things I needed to do to take care of myself. I first attented their Northern California Rock 'n Roll event in August that year where I was introduced to others experiencing the same thing. Attending the event gave me hope when what several doctors seemed to have the idea that I didn't have a quality future. I will continue to support SMA and raise awareness for Spinal Muscular Atrophy in hopes that one day there will be a cure and that medical professionals will have a better understanding of the disease and how it affects different people differently and that the future for us is not doomed.
I grew up always being the slowest runner and always struggling to keep up with others my age, despite how many athletic activities I participated in and how much time I spent trying to improve my strength and stamina. It seemed like it didn't matter what I did, nothing worked. But when it was brought to attention of doctors, they didn't seem to think there was anything there. For a long time I felt like I needed to hide this side of me and fit in as being "normal." My hope is that no one ever has to experience that and that one day SMA will be a recognized neuromuscular disease in general doctor's offices. I can't count the number of office visits after I was diagnosed where a doctor saw Spinal Muscular Atrophy written in my chart and proceeded to ask me what it is.
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