Welcome to My Personal Page
It's that time again! In honor of Elke's 6th Birthday (YES 6!!!) we are again fundraising for Cure SMA.
Please join us in celebrating Elke's 6th Birthday. We will be walking in the second Dallas Walk-n-Roll on Saturday, April 4th at Parr Park Rotary Pavillion, Grapevine, 9:30am - 1:30pm. It will be a morning of friendship, activities and fun. Be sure to register before March 1st to guarantee you receive a t-shirt with registration!
As you all know our granddaughter, Elke, has Spinal Muscular Atrophy (SMA). When she was diagnosed at 10 weeks old, she had a very poor outlook to reach even her second birthday. With the help of Cure SMA's research and support she is a SMA Warrior about to turn 6! I hope you all will join me in supporting Cure SMA as they lead the way to a world without spinal muscular atrophy.
SMA is the number one genetic cause of death for infants and 1 in 50 people in the United States is a genetic carrier.
SMA impacts the lives of thousands of people and Cure SMA is an irreplaceable resource. By providing services like care packages for newly diagnosed families, teens, and adults, local Summit of Strength programs, an equipment pool, and the Annual SMA Conference - Cure SMA supports the community as they navigate life with SMA. Cure SMA has also invested more than $80 million in research and has funded half of all the ongoing new drug programs for SMA, including Spinraza and Zolgensma, two FDA-approved therapies for SMA.
Join me by registering or donating today! Make a donation of $25 or more to support Cure SMA so they can keep providing these important programs and services for the community. Thank you for joining me in the fight against SMA!