Welcome to Team Captain Jack
I am fundraising for Cure SMA because they are leading the way to a world without spinal muscular atrophy. SMA is the number one genetic cause of death for infants and 1 in 50 people in the United States is a genetic carrier.
SMA impacts the lives of thousands of people and Cure SMA is an irreplaceable resource. By providing services like care packages for newly diagnosed families, teens, and adults, local Summit of Strength programs, an equipment pool, and the Annual SMA Conference - Cure SMA supports the community as they navigate life with SMA. Cure SMA has also invested more than $75 million in research and has funded half of all the ongoing new drug programs for SMA, including Spinraza, the first-ever approved therapy for SMA.
Join me by registering or donating today! Make a donation of $25 or more to support Cure SMA so they can keep providing these important programs and services for the community.
Jack and mom are grateful for Cure SMA. Over the past 3.5 years, we have used every resource that Cure SMA provides. We have attended every Conference since diagnosis (California, Florida, Texas, and next California). We have donated a gift to the newly diagnosed care package. Lastly, we are excited to travel to a city who’s done so much for Jack regarding all his special health needs, Dallas. Please consider making any size donation in honor of my strong boy.
Thank you for joining me in the fight against SMA!