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    • SMA Care Center Network

      Local, evidenced-based care centers, designed to improve the lives of those with SMA.

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      There are nationwide programs available for all families affected by SMA in the US.

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      Read the latest issue of Compass, Cure SMA’s research publication.

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      Many state and federal policies impact nearly all aspects of life for those affected by SMA.

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      Support our mission and raise awareness with Cure SMA merchandise.

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  • SMA
    • About SMA
      • Overview
      • Types of SMA
      • Genetics
      • Testing & Diagnosis
      • Newborn Screening
    • Living with SMA
      • Overview
      • Newly Diagnosed
      • Infants and Children
      • Teens and Adults
      • Carriers of SMA
    • Treatment
      • Overview
      • Evrysdi
      • Spinraza
      • Zolgensma
    • Handling Medical Issues
      • Overview
      • Musculoskeletal
      • Nutrition
      • Breathing
      • Quality of Life
    • FAQs & Glossary
      Care Series Booklets
      Directions Newsletters
  • Support & Care
    • SMA Care Center Network

      Local, evidenced-based care centers, designed to improve the lives of those with SMA.

      LEARN MORE
    • Local Support

      Cure SMA offers a variety of ways to get involved and connect with your local community.

      Find out more

    • National Support

      There are nationwide programs available for all families affected by SMA in the US.

      Find out more

    • Treatment Centers
      News
      Contact Us
  • Research
    • Our Strategy
      • Overview
      • Basic Research
      • Drug Discovery
      • Clinical Trials
    • Latest Advances
      • Overview
      • Therapeutic Approaches
      • SMA Drug Pipeline
    • For Researchers
      • Overview
      • Funding Opportunities
      • Research & Clinical Care Meeting
      • Recruit for Clinical Trials
    • Research Publications

      Read the latest issue of Compass, Cure SMA’s research publication.

      Learn more
  • Healthcare Providers
    • About SMA for HCPs
    • Research & Clinical Care Meeting
    • Clinical Guidelines
    • Educational Opportunities for Providers
  • Get Involved
    • Ways to Give
      • Overview
      • Donate
      • Fundraise
      • Planned Giving
      • Volunteer
    • Event Calendar
      • Cure SMA Events
      • Annual SMA Conference
    • Advocacy

      Many state and federal policies impact nearly all aspects of life for those affected by SMA.

      Learn more
    • Cure SMA Store

      Support our mission and raise awareness with Cure SMA merchandise.

      Shop now
  • About Cure SMA
    • Mission and Values
    • Team and Board
    • National Partners
    • Chapters
    • Annual Reports/Financials
    • Media
    • Contact Us

Welcome to My Personal Page

Donate Now

I am fundraising for Cure SMA because they are leading the way to a world without spinal muscular atrophy. SMA is the number one genetic cause of death for infants and 1 in 50 people in the United States is a genetic carrier.

SMA impacts the lives of thousands of people and Cure SMA is an irreplaceable resource. By providing services like care packages for newly diagnosed families, teens, and adults, local Summit of Strength programs, an equipment pool, and the Annual SMA Conference - Cure SMA supports the community as they navigate life with SMA. Cure SMA has also invested more than $80 million in research and has funded half of all the ongoing new drug programs for SMA, including Spinraza and Zolgensma, two FDA-approved therapies for SMA.

Join me by registering or donating today! Make a donation of $25 or more to support Cure SMA so they can keep providing these important programs and services for the community.  

 

Thank you for joining me in the fight against SMA!

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Donate Now
Team Owen
Personal Progress:
of Goal
$25 Raised
$250.00
Fundraising Honor Roll
Margaret Close
$25

Cure SMA

Cure SMA
925 Busse Road, Elk Grove Village, IL 60007

(800) 886-1762

info@curesma.org

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