Welcome to My Personal Page
Hi everyone It's Jane!
I am participating this year in the annual SMA Walk and Roll Fundraiser. It's been a few years since I have been able to participate. I hope you can join me the day of the walk if not please join me and support Cure SMA by making a contribution to my personal fundraising page.
Cure SMA has made it possible for me to receive my Spinraza Treatments, I am on my 5th dose and getting stronger!
Some Facts about SMA:
Spinal Muscular Atrophy is the number one genetic cause of death for infants, and approximately 1 in every 50 individuals is a genetic carrier for SMA.
But here’s great reason for hope. Thanks to the dedication of our community and the ingenuity of our researchers, we now have the first-ever approved treatment that targets the underlying genetics of SMA. But our work is not done. We know what we need to do to develop and deliver effective therapies. And we’re on the verge of further breakthroughs that will continue to change the course of SMA for everyone affected—from infants to adults—and eventually lead to a cure.
Cure SMA is uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. They’ve already invested $70 million in research.
They also provide vital support for families living with SMA, improving their quality of life today. And every year they host the largest SMA conference in the world, bringing families together with the leading SMA researchers.
Making a donation to Cure SMA is easy, secure and completely confidential. Just click on the link and follow the steps!
Thank you again for your personal gift to support my efforts to fund vital research and family support programs for those affected by SMA.