2018 North Jersey Walk-n-Roll
Welcome to My Personal Page
As many of you know, a new treatment is available for SMA! This treatment is the first FDA approved treatment for SMA since I was born. Although I do not expect to be able to move all of my muscles or even walk after receiving this treatment, I am still going to investigate it to find out if it is possible for me to take it. I would be thrilled if it gives me some of my speech back or some hand movement so I can drive a power wheelchair!
This is not the only treatment that is on the rise! There are several treatments that are being studied right now, so we need to keep the fundraising going and #NeverGiveUp!
Please consider joining my team, #NeverGiveUp, to help raise money so SMA can stop affecting children and adults! If you can, please join us on June 23rd at 10:45 AM at Roosevelt Park, Roosevelt Drive, Edison, NJ 08837 for a fun-filled event! If you can't make it, please consider donating to my team so we can conquer SMA! Any amount helps tremendously!!!