2017 Northern California Walk-n-Roll
Golden Gate Park
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Please join me and support Cure SMA by making a contribution to my personal fundraising page.
Hi everyone! I am participating in a Cure SMA Walk & Roll on August 20th at Golden Gate Park. The baby in the picture is Tristan and he has a rare genetic disease called Spinal Muscular Atrophy. His body doesn't produce the protein to make his muscles move; meaning he can't swallow, cough, hold his head up, and breathe 100% on his own. My daughter, Jamelyn, has been working with him since he was about 4 months old. Tristan was only expected to live 6 months, but we just celebrated his first birthday last weekend :) 100% of the funds go to Cure SMA not only for research but to make care packages of equipment for newly diagnosed families. If you can, please donate or join our team and walk with us!