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I am fundraising for Cure SMA not only because they are leading the way to a world without spinal muscular atrophy, but also in memory of our sweet daughter Corinne! Corinne Shields was diagnosed with SMA type 1 on February 13, 2017. She fought long and hard and brought a light to this world unlike any other! Cori went to be with Jesus where she can finally breathe easily on August 10, 2018. Even though we miss her tremendously, she is always with us! We are extremely grateful for CureSMA and all of the support and resources they provided us during our difficult journey. We are thankful for all of the advances made and continue to hope, pray and support all of the children and families who have been or will be met with SMA.
SMA is the number one genetic cause of death for infants and 1 in 50 people in the United States is a genetic carrier.
SMA impacts the lives of thousands of people and Cure SMA is an irreplaceable resource. By providing services like care packages for newly diagnosed families, teens, and adults, local Summit of Strength programs, an equipment pool, and the Annual SMA Conference - Cure SMA supports the community as they navigate life with SMA. Cure SMA has also invested more than $75 million in research and has funded half of all the ongoing new drug programs for SMA, including Spinraza, the first-ever approved therapy for SMA.
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Thank you for joining me in the fight against SMA! We truly appreciate all of the love and support you have provided for our family!