Welcome to My Personal Page
I am fundraising for Cure SMA because they are leading the way to a world without spinal muscular atrophy. SMA is the number one genetic cause of death for infants and 1 in 50 people in the United States is a genetic carrier.
SMA impacts the lives of thousands of people and Cure SMA is an irreplaceable resource. By providing services like care packages for newly diagnosed families, teens, and adults, local Summit of Strength programs, an equipment pool, and the Annual SMA Conference - Cure SMA supports the community as they navigate life with SMA. Cure SMA has also invested more than $80 million in research and has funded half of all the ongoing new drug programs for SMA, including Spinraza and Zolgensma, two FDA-approved therapies for SMA.
Caitlin, as most of you know, also has Type 1 SMA. She is currently on a new drug treatment called Evrysdi/Risdiplam. It is a daily liquid that can be administered through a g-tube at home.
Because of Cure SMA and the wonderful doctors and nurses at Children's Hospital Caitlin has lived to be 32 years old, much longer than everyone thought when she was 4 years old.
Join me by registering or donating today! Make a donation of $25 or whatever you can to support Cure SMA so they can keep providing these important programs and services for the community. Thank you for joining us in the fight against SMA!
Caitlin and Eileen
Event Name: 2021 Cincinnati Walk-n-Roll
Return to main event site events.curesma.org/CincinnatiWalk