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In honor of Elke's 5th Birthday (YES 5!!!) I am fundraising for Cure SMA.
Please join me in celebrating Elke's 5th Birthday. We will be walking in the first annual Dallas Walk-n-Roll on Saturday, March 30th at Parr Park Rotary Pavillion, Grapevine, 9:30am - 1:30pm. It will be a morning of friendship, activities and fun. Be sure to register before March 1st to guarantee you receive a t-shirt with registration!
As you all know our granddaughter, Elke, has Spinal Muscular Atrophy (SMA). When she was diagnosed at 10 weeks old, she had a very poor outlook to reach even her second birthday. With the help of Cure SMA's research and support she is a SMA Warrior about to turn 5!
Cure SMA is leading the way to a world without spinal muscular atrophy. They support the community by providing services like care packages for newly diagnosed families, local Summit of Strength programs, an equipment pool, and the Annual SMA Conference. Cure SMA has also invested more than $75 million in research and has funded half of all the ongoing new drug programs for SMA, including Spinraza, the first-ever approved therapy for SMA.
Join our team and come walk with us on March 30th to help make a difference in the lives of those affected by SMA! If you are unable to register, please consider making a gift to support Cure SMA’s mission to find a cure for SMA.
Make a donation of $25 or more to support Cure SMA so they can keep providing these important programs and services.
Thank you for joining us in the fight against SMA!