SMA. Three letters that forever changed our lives on June 18, 2019. At just a month old Stella received her diagnosis of SMA type 1. Thanks to the many advancements in treatment, Stella received a gene replacement therapy on July 3. We have seen amazing improvements since then, making us even more thankful than we were just the day before. We are walking n rolling on November 9 to raise awareness about SMA and to raise funds to continue research so that we can CURE SMA,
I am fundraising for Cure SMA because they are leading the way to a world without spinal muscular atrophy. SMA is the number one genetic cause of death for infants and 1 in 50 people in the United States is a genetic carrier.
SMA impacts the lives of thousands of people and Cure SMA is an irreplaceable resource. By providing services like care packages for newly diagnosed families, teens, and adults, local Summit of Strength programs, an equipment pool, and the Annual SMA Conference - Cure SMA supports the community as they navigate life with SMA. Cure SMA has also invested more than $80 million in research and has funded half of all the ongoing new drug programs for SMA, including Spinraza and Zolgensma, two FDA-approved therapies for SMA.
Join me by registering or donating today! Make a donation of $25 or more to support Cure SMA so they can keep providing these important programs and services for the community.
Thank you for joining me in the fight against SMA!