Our family is walking/rolling for Cure SMA!
Spinal muscular atrophy (SMA) is a disease that robs people of their physical strength, significantly impacting an individual’s ability to walk, swallow, or breathe. It affects 1 in 11,000 births in the United States, and 1 in 50 people is a genetic carrier. There is no cure, yet, but there is great reason for hope. And that is why we are fundraising for the Cure SMA Walk-n-Roll!
Research funded by Cure SMA is driving therapies that are changing the course of SMA. One of these is called Zolgensma, which Ariya fortunately got in December 2019. Thanks to this gene therapy, Ariya is slowly getting stronger than she ever would have been without treatment.
Together, we have the power to meet the ever-changing needs of all people with SMA and can build a stronger future for generations to come.
Support our cause by making a gift or registering to walk or roll with us today!
** There is a typo on this page. The event date is not 06/10/21. It is 09/18/21.
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