2018 Virginia Chapter Walk-n-Roll

Bennett at his 4th birthday party
Bennett at his 4th birthday party

Bennett's Village

What a hard year--last year, Bennett was the star of the Walk N' Roll.  His strength gains and wheelchair driving skills were the envy of the younger kids.  And then tragedy struck and an infection took our boy on February 28 of this year. 


We are supporting Cure SMA because the research and the treatments that they funded gave Bennett so much strength and independence. 

Thanks to the dedication of our community and the ingenuity of our researchers, we now have the first-ever approved treament for SMA. But our work is not done. We're on the verge of further breakthroughs that will continue to change the course of SMA for everyone affected-from infants to adults-and eventually lead to a cure. 

We have chosen Cure SMA because they are uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. They’ve already invested $70 million in research. 

They also provide vital support for families living with SMA, improving their quality of life today. And every year they host the largest SMA conference in the world, bringing families together with the leading SMA researchers. 

Making a donation to Cure SMA is easy, secure and completely confidential.  Just click on the link and follow the steps!

Thank you again for your personal gift to support our efforts to fund vital research and family support programs for those affected by SMA in memory of our amazing boy, who we all miss so very much.

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