Charlie was diagnosed with Spinal Muscular Atrophy type 1 on December 1 2015 when she was just 5 onths old. We found CURESMA not along after and this is truly the most amazing organization ever.
She is such an amazing girl. She loves life and has the most sassiest personality. We always try to do whatever we need to do to keep our girl happy and fighting. She is almost 4 years old. She loves the color purple and anything that sparkles. She loves hair clips and bows, Coco, Daniel Tiger, Moana and music by Lindsey Stirling.
Come support our girl and this amazing organization! We can't wait to see you there!