I am fundraising for Cure SMA because they are leading the way to a world without spinal muscular atrophy. SMA is the number one genetic cause of death for infants and 1 in 50 people in the United States is a genetic carrier.
Madi is a 16 year old teenager, who, despite being affected by SMA Type 2, lives her life like other high school students. She is an excellent student and participates in the social and extracuricular activities of her high school. She likes to write and is an editor of the school yearbook. She is in French Club and hopes to travel to France with her class sometime. She is also the Junior Class Treasurer. She says she likes to go to the movies, hang out with her friends and sleep till noon. She sounds like a normal teenager to me!
SMA impacts the lives of thousands of people and Cure SMA is an irreplaceable resource. By providing services like care packages for newly diagnosed families, teens, and adults, local Summit of Strength programs, an equipment pool, and the Annual SMA Conference - Cure SMA supports the community as they navigate life with SMA. Cure SMA has also invested more than $75 million in research and has funded half of all the ongoing new drug programs for SMA, including Spinraza, the first-ever approved therapy for SMA.
Join my team and make a difference in the lives of those affected by SMA! Make a donation of $25 or more to support Cure SMA so they can keep providing these important programs and services.
Thank you for joining me in the fight against SMA!