2019 Cure SMA Northern California Walk-n-Roll
Melia was diagnosed with Spinal Muscular Atrophy (SMA) on December 19, 2016. SMA slowly robs someone of their ability to move, eat and breathe. I am fundraising for Cure SMA because they are leading the way to a world without spinal muscular atrophy. SMA is the number one genetic cause of death for infants and 1 in 50 people in the United States is a genetic carrier.
SMA impacts the lives of thousands of people and Cure SMA is an irreplaceable resource. By providing services like care packages for newly diagnosed families, teens, and adults, local Summit of Strength programs, an equipment pool, and the Annual SMA Conference - Cure SMA supports the community as they navigate life with SMA. Cure SMA has also invested more than $75 million in research and has funded half of all the ongoing new drug programs for SMA, including Spinraza, the first-ever approved therapy for SMA.
The 17th Annual Northern California Walk-n-Roll will be returning to Kennedy Grove in El Sobrante on August 24th. Join me by registering for team, Loving Melia!
If you are unable to register, please consider making a contribution to support Cure SMA’s mission to find a cure for SMA.
Thank you for joining me in the fight against SMA!
Love, Danielle, Emmanuel, Marin and Melia