2019 Cure SMA Northern California Walk-n-Roll
Dear friends and family,
You may know that at the end of 2016, the FDA approved the first drug for SMA, Spinraza. And just this year, a second drug for SMA has been approved, with more promising candidates currently in development. It's amazing to see how far we've come together as a community. The future holds incredible promise for everyone affected by SMA.
In the fall, I'll be starting my third year at UC Davis. This will be my first full year as a statistics major, and I am very excited to dive into higher level material! After two years living on my own, I've learned a lot about everything from managing my care to cooking without setting my apartment on fire, but there's still more to discover. In the last year, I've also started Spinraza myself, and while I have yet to see many changes, I am very optimistic.
Spinal muscular atrophy is the number one genetic cause of death for infants, and approximately 1 in every 50 individuals is a genetic carrier for SMA.
But here's great reason for hope. Thanks to the dedication of our community and the ingenuity of our researchers, we now have the first-ever approved treatment that targets the underlying genetics of SMA. But our work is not done. We know what we need to do to develop and deliver effective therapies. And we're on the verge of further breakthroughs that will continue to change the course of SMA for everyone affected—from infants to adults—and eventually lead to a cure.
We have chosen Cure SMA because they are uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. They’ve already invested $70 million in research.
They also provide vital support for families living with SMA, improving their quality of life today. And every year they host the largest SMA conference in the world, bringing families together with the leading SMA researchers.
Making a donation to Cure SMA is easy, secure and completely confidential. Just click on the link and follow the steps!
Thank you again for your personal gift to support our efforts to fund vital research and family support programs for those affected by SMA.