Byrds For A Cure
We are fundraising for Cure SMA because they are leading the way to a world without spinal muscular atrophy. SMA is the number one genetic cause of death for infants and 1 in 50 people in the United States is a genetic carrier.
SMA impacts the lives of thousands of people and Cure SMA is an irreplaceable resource. By providing services like care packages for newly diagnosed families, teens, and adults, local Summit of Strength programs, an equipment pool, and the Annual SMA Conference - Cure SMA supports the community as they navigate life with SMA. Cure SMA has also invested more than $75 million in research and has funded half of all the ongoing new drug programs for SMA, including Spinraza, the first-ever approved therapy for SMA.
When Kyle & Lauren were born 12 years ago, there was NO treatment and NO cure for SMA. Today in 2019, there are now TWO therapies for SMA which are FDA-approved! We are proud to have partnered with Cure SMA before, and are proud to continue this year at the Walk N Roll. We need more therapies, better therapies, cheaper therapies.
Join our team and make a difference in the lives of those affected by SMA! If you are unable to register, please consider making a gift to support Cure SMA’s mission to find a cure for SMA.
Make a donation of $25 or more to support Cure SMA so they can keep providing these important programs and services. The deadline to get your Walk t-shirt is 10/18, so register before then!
Thank you for joining us in the fight against SMA!