Madi's Miracle Mob
Spinal muscular atrophy (SMA) is a disease that robs people of physical strength by affecting the motor nerve cells in the spinal cord, taking away the ability to walk, eat, or breathe. It is the number one genetic cause of death for infants. At the age of 2, my niece Madi was diagnosed with SMA and I have watched my sister Megan and her family struggle with helping Madi lead a normal day to day life ever since. Because of this, SMA is a cause I hold very close to my heart.
I am fundraising for Cure SMA because they are actively involved in the fight for a cure - they are leading the way to a world without spinal muscular atrophy. SMA is the number one genetic cause of death for infants and 1 in 50 people in the United States is a genetic carrier.
SMA impacts the lives of thousands of people and Cure SMA is an irreplaceable resource. By providing services like care packages for newly diagnosed families, teens, and adults, local Summit of Strength programs, an equipment pool, and the Annual SMA Conference - Cure SMA supports the community as they navigate life with SMA. Cure SMA has also invested more than $75 million in research and has funded half of all the ongoing new drug programs for SMA, including Spinraza, the first-ever approved therapy for SMA.
Join my team and make a difference in the lives of those affected by SMA! If you are unable to register, please consider making a gift to support Cure SMA’s mission to find a cure for SMA.
Make a donation of $25 or more to support Cure SMA so they can keep providing these important programs and services.
Thank you for joining me in the fight against SMA!