Nothing Stops Neely
Our daughter Neely was diagnosed with Spinal Muscular Atrophy (SMA) Type 2 in December of 2017 just before her 2nd birthday. Since then, our family has furthered our knowledge of this terrible muscular disease and advocate for new research, treatment, and a cure. Please join me and support Neely and Cure SMA by signing up for our FIRST TEAM and walk with us on Sunday, November 4th at NTC Park in San Diego, and by making a contribution to our fundraising page for the San Diego Walk-n-Roll.
We're supporting Cure SMA because spinal muscular atrophy is the number one genetic cause of death for infants, and approximately 1 in every 50 individuals is a genetic carrier for SMA. But there’s great reason for hope. We know what causes SMA and what we need to do to develop more effective treatments and hopefully find a cure with 19 ongoing drug programs-and five of those are now in clinical trials.
We’ve chosen Cure SMA because they are uniquely positioned to direct funds to where they can make the greatest difference as quickly as possible. They’ve already invested $70 million in research.
They also provide vital support for families living with SMA, improving their quality of life today. And every year they host the largest SMA conference in the world, bringing families together with the leading SMA researchers.
Making a donation to Cure SMA is easy, secure and completely confidential. Just click on the link and follow the steps!
Thank you again for your personal gift to support my efforts to fund vital research and family support programs for those affected by SMA.